Just typing up some of R’s observations about my daily physical issues. Thought it would be handy to have them here as opposed to floating around on a piece of paper that will no doubt be ripped to shreds by a cat in the near future.
29th May: Went to (location) using rollator and was able to take train there and back.
Rollator more supportive than cane although assistance required w/it getting onto and off train and with some bumpy areas like level crossing. Mobility issues – pain in hip, severe tiredness on way back.
1st June: required stick to walk from bedroom to bathroom in evening. Difficulty sleeping, eczema flare.
2nd June: Difficulty sleeping. Able to get around house (ie trips to bathroom) without stick, but obviously stiff & in pain.
3rd June: forced to get up at 8.15 for fasting bloodtest. Went there and back by taxi, had to sleep after returning home.
4th June: Slept a great deal, stiffness and soreness.
5th June: slept for 16+ hours. when coming back from kitchen almost fell over due to general shakiness. Sleep difficulty despite exhaustion.
6th June: extremely shaky and nauseous in taxi on way to endocrinologist. when returned home had to rest in bed for 4 hours. took rollator for brief trip into town to get passport photos – extremely tired/wrecked by time we left town. went to bed immediately. severe pain by time we were ready to leave town, feeling every bump in hands through rollator.
7th june: still shattered from 2x trips out yesterday. awake for 2-3 hours before needing to rest. could not get up. napped 4-5 hours. joint pain in hands (severe) poss related to rollator.
Unfortunately we haven’t kept written records of things since the 7th june but it’s safe to say things haven’t been any better. I sleep a lot and hurt a lot and my neck has been spasming a lot as well, as badly as it did last year.
I also have the flu. Highlights of the past few days include sleeping 19 hours, vomiting from pain and muscle spasms, and being an all-round snotbag.
I wanted to write about what it’s like using the rollator (pretty helpful for the most part, but there are times I would still rather have a wheelchair) but I just don’t have the energy, mental or physical. Words are hard right now.
Basically I feel dreadful, have done for quite some time, and although I know there was a time when I didn’t, I don’t remember what that felt like. I realise this post is pretty whiny but better out than in, okay?
posted by jeneli
Filed under: Uncategorized Tagged: | cfs, chronic illness, chronic pain, disability, endless litany of woe, fatigue, Fibromyalgia, life, mobility aids, mysterious unspecified pain, not-so-good days, rollator, symptoms
